Our Work
MCPM’s programs are organized around a single objective: that communities historically excluded from scientific progress are present in it, informed about it, and able to benefit from it.
Precision medicine, sickle cell advocacy, CRISPR education, and research participation.
MCPM connects community coalitions, patients, and faith networks to scientific institutions, and helps those institutions engage communities as participants rather than audiences.
Health Ministries Network and the congregational base beneath MCPM’s community work.
Health Ministries Network provides the recurring, trusted relationships through which MCPM’s health education, advocacy, and research participation work reaches families.
Youth education, genomics literacy, CRISPR career pathways, and community workforce development.
MCPM supports programs that introduce genomics and biotechnology careers to students in communities historically excluded from the scientific workforce.
04 — Genomic Economic Rights
This is the shift from scientific participation to genomic economic rights. For decades, the central question was whether underserved communities would be included in precision medicine. Today, another question demands attention: when our biological contributions help generate scientific discoveries, intellectual property, and commercial value, who benefits economically?
MCPM is advancing the Participant Genomic Rights and Economic Benefit Framework through national policy engagement, institutional discussions, and emerging biotechnology relationships. The objective is to explore practical models for informed consent, participant rights, responsible data governance, economic participation, and transparent community benefit-sharing.
This framework is a proposed initiative under development. It does not describe an enacted policy, and it does not assert that research participants hold intellectual property rights created through research.
The fourth question in the arc of community engagement: not whether communities will be studied, informed, or included, but whether they will share in the economic value their participation helps create.
An emerging storytelling and economic-equity initiative introducing the relationship between biological contribution, scientific discovery, and community ownership of the resulting value.
A convening of policy, scientific, and community stakeholders working through the practical questions of consent, data governance, and benefit-sharing models.