Institutional Record
A chronological record of engagements, collaborations, and initiatives. Each entry states the basis on which it is presented. Engagements describe participation; they do not imply endorsement, appointment, or formal partnership by the institutions named.
Supported by a published article, recording, or external source linked from this page.
Provided by MCPM. Not an independently verified publication.
Work in progress. Not an enacted policy, executed agreement, or completed outcome.
2009
Founder
Congregational health ministry work expands into organized sickle cell advocacy and community engagement. 2009 is the organization’s founding year according to its own records; it is not presented here as an incorporation date.
2010–2014
Community advocate
Advocacy focused on the emergency department experience of sickle cell patients and on the clinical care standards applied to them.
2015
Community participant
Participation in the launch-period national conversation on precision medicine and the inclusion of historically underserved communities. Participation in a federal initiative is distinct from a government appointment, award, endorsement, or contract.
2015–2016
Community inclusion contributor
Contributions to community inclusion conversations surrounding the national precision medicine effort that later developed into the All of Us Research Program.
Date not published
Collaborator
Community genomics education events involving Baltimore and Harvard audiences.
Date not published
Public speaker
Public talk and presentations on community inclusion in genomic medicine, alongside scientists central to the development of CRISPR.
IGI multimedia library — Michael Friend public talk2018
Steering committee member
Program design and community equity representation at the public CRISPR forum.
2018
Featured speaker
Patient advocacy and precision medicine.
Date not published
Participant
Engagement on how scientific narrative shapes public understanding of genomic medicine.
Date not published
Editorial feature
“The Life, Death, and Dream of a Research Diversity Crusader” — a full editorial feature on research diversity advocacy.
Read the featureDate not published
Spotlight
A published spotlight on MCPM and its health equity work.
Read the spotlightCurrent
Initiative under development
A proposed framework advanced through national policy engagement and institutional discussion, exploring informed consent, participant rights, responsible data governance, economic participation, and community benefit-sharing.
Explore the frameworkThis record is maintained by MCPM and updated as documentation becomes available. Correction requests may be sent to info@mcpm.org.